Work

Some of my blog friends have asked me what I do for a living.I am a pediatric nurse but I work on a craniofacial/neuro floor. I work with patients with seizures, mitochondrial disorders, spina bifida, cleft lip/palate and other facial deformities, skull fractures, head injuries and brain and spinal cord tumors.

We also get the overflow patients Which mean we take care of patients with anything like fever and infections, resp issues, blood disorders, broken bones and every now and then we get some neat stuff. For the person not in the medical profession, "neat stuff" would not be that neat for you..

Brain tumors and cleft kids are the ones that I get passionate about. I have gotten close to a lot of my brain tumor patients and have seen them from diagnosis to remission and sometimes, home to Jesus. Both of these families teach me a lot even though they are so different. But both diagnosis can change your life. Cleft surgeries are not only just 1 surgery and then all is well. Sometimes, you get several surgeries over several years and a lot of time you deal with speech delays and other cosmetic surgeries..Love my families. They have taught me a lot.

Brain tumors..Ok, well first of all, they suck. But the families, oh the rockin, awesome families. They teach us nurses so much. I don't know why brain tumors hit the sweetest, loving families who have such strong faith. I just don't know. I don't know why the sweetest families are the ones who lose their babies after many surgeries, chemotherapy and hospital stays..I just don't know. But even the families who have lost children and still keep in touch, find goodness in their sorrow and that helps strengthen my faith. To know God sees the bigger picture when we can't seems to help. We had a patient pass away last week that a lot of nurses took care of. I never did but I always said hello to the family and they were so compassionate to other families.

Connor used to say, "God is good all the time,All the time, God is good" Oh sweet Connor, yes he is!!

Some of you may have seen another one of patients on the news a few weeks ago. Haley and her mom have touched every single life in the hospital Haley is just over a year and has a really yucky stinky tumor with a poor prognosis. But they keep fighting. Haley is a fighter. She has experienced so much and has even scared a few nurses..But they have hope, we have hope..

Please pray for Haleys family.. Hope ya got to see her on the news..

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